The International NUT Carcinoma Registry was formed to increase awareness of this disease and to learn more about what causes it and how to treat it.
NEWS:
IASLC 2025 Targeted Therapies of Lung Cancer Meeting
https://www.ttlc2025-iaslc.org/full-program
Sara Walton, BS. poster presentation “Presenting features and diagnostic delays of NUT carcinoma: A report from the NUT carcinoma registry”; Thurs Feb 20, 6:30pm PT, Poster Session
Justin Kim, BA. poster presentation “Molecular characterization of NUT carcinoma: A report from the NUT carcinoma registry”; Thurs Feb 20, 6:30pm PT, Poster Session
Jia Luo, MD. presentation “NUT and SMARCA4 mt lung cancers”; Sat Feb 22, 8:15am PT, Rare Thoracic Malignancies
DF/HCC Lung Cancer Program 2024
Kim JK, Walton SA, Nguyen T, Paik PK, Chaft JE, Hsu R, Piha Paul SA, Jänne PA, Sholl LM, DuBois SG, Hanna GJ, Shapiro, GI, French CA, and Luo J. Molecular characterization of NUT carcinoma: A report from the NUT carcinoma registry. Dana Farber/Harvard Cancer Center Lung Cancer Symposium 2024.
Walton SA, Kim JK, Paoloni F, Liew JW, Haradon DA, Haradon JJ, Cotzany ZZ, Miller KW, Paik PK, Chaft JE, Hsu R, Piha-Paul SA, Rotow JK, Jänne PA, Barbie DA, Sholl LM, DuBois SG, Hanna GJ, Shapiro GI, French CA. Presenting features and diagnostic delays of NUT carcinoma: A report from the NUT carcinoma registry. Dana Farber/Harvard Cancer Center Lung Cancer Symposium 2024.
ASCO 2024
Luo J, Kim JK, Walton SA, Nguyen T, Paik PK, Chaft JE, Hsu R, Piha-Paul SA, Janne PA, Sholl LM, DuBois SG, Hanna GJ, Shapiro GI, French CA. Molecular characterization of NUT carcinoma: A report from the NUT carcinoma registry. Proceedings Journal of Clinical Oncology 2024. 42;16_suppl. doi: 10.1200/JCO.2024.42.16_suppl.8553
WCLC 2024
Luo J, Walton SA, Kim JK, Paoloni F, Liew JW, Cotzany ZZ, Nguyen T, Paik PK, Chaft JE, Hsu R, Piha-Paul SA, Janne PA, Barbie DA, Sholl LM, DuBois SG, Hanna GJ, Shapiro GI, French CA. Presenting features and diagnostic delays of NUT carcinoma. Proceedings Journal of Thoracic Oncology 2024. 19;10: S71-72. doi: 10.1016/j.jtho.2024.09.129
AACR 2024
Kim JK, Walton SA, Nguyen T, Paik PK, Chaft JE, Hsu R, Piha Paul SA, Jänne PA, Sholl LM, DuBois SG, Hanna GJ, Shapiro, GI, French CA, and Luo J. Molecular characterization of NUT carcinoma: A report from the NUT carcinoma registry. American Association Cancer Research Annual Meeting 2024.
DF/HCC Lung Cancer Program 2023
Kim JK, Wu SJ, Huang J, Durall RT, Becker S, Canty S, Molinaro S, Pisick E, Shapiro GI, French CA, Luo J. BRD2::NUTM1: a novel fusion in NUT carcinoma with exceptional response to chemotherapy. Dana Farber/Harvard Cancer Center Lung Cancer Symposium 2023.
PAST INVITED TALKS:
Jia Luo, M.D.
2024 Management of NUT Carcinoma
Medscape In Discussion on Lung Cancer, New York, NY (virtual)
Christopher French, M.D.
2024 Closing the book on readers and writers in NUT carcinoma
2024 MGB Cancer Forum, MGB, Boston, MA, (virtual)
Christopher French, M.D.
2024 Closing the book on readers and writers in NUT carcinoma
Think Tank on Advancing Precision Medicine in Rare Cancers
Target Cancer Foundation, Boston, MA
Christopher French, M.D.
2024 Updates in NUT Carcinoma
Samuel Waxman Cancer Research Foundation Annual Scientific Review
NY Athletic Club, NY, NY
Christopher French, M.D. and Jia Luo, M.D.
2024 Clinicopathologic Features and Pathogenesis of NUT Carcinoma / Invited lecture
9th International Tuebingen Symposium on Solid Tumors, Tuebingen, Germany (virtual)
CLINICAL TRIALS:
There is a clinical trial combining a BET inhibitor, ZEN003694, with chemotherapy treatment (etoposide and cisplatin) for adult and pediatric patients (12-17 Years) with NUT Carcinoma. Click HERE for more information about this trial.
There is a clinical trial utilizing a dual BET and CBP/p300 inhibitor in adult patients with targeted advanced solid tumors (including NUT Carcinoma). Click HERE for more information.
There is a clinical trial combining a BET inhibitor, ZEN003694, with CDK inhibitor, abemaciclib, for adult and pediatric patients (12-17 Years) with NUT Carcinoma. Click HERE for more information.
SOCIAL MEDIA LINKS:
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You are not alone. Visit the NUT Carcinoma Support Page on Facebook to connect with families impacted by this cancer.
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Visit the NC Registry Facebook Page
MEDIA:
Please view the video below to learn more about NUT carcinoma:
We welcome any donations.
The NC Registry is a foundational tool to study NUT carcinoma and develop better treatments for patients with this disease.
Cancer Journeys
Be informed and inspired with stories from NUT carcinoma survivors
View their stories HERE
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