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The International NUT Carcinoma Registry was formed to increase awareness of this disease and to learn more about what causes it and how to treat it.

ANNOUNCEMENTS:

There is a clinical trial combining a BET inhibitor, ZEN003694, with chemotherapy treatment (etoposide and cisplatin) for adult and pediatric patients (12-17 Years) with NUT Carcinoma. Click HERE for more information about this trial.

There is a clinical trial studying an investigational drug called BMS-986158 as a possible treatment for NUT Carcinoma in young adults and children (Age ≤21 years). Click HERE for more information.

There is a clinical trial utilizing a dual BET and CBP/p300 inhibitor in adult patients with targeted advanced solid tumors (including NUT Carcinoma). Click HERE for more information.

There is a clinical trial combining a BET inhibitor, ZEN003694, with CDK inhibitor, abemaciclib, for adult and pediatric patients (12-17 Years) with NUT Carcinoma. Click HERE for more information.

SOCIAL MEDIA LINKS:

You are not alone. Visit the NUT Carcinoma Support Page on Facebook to connect with families impacted by this cancer.

NEWS:

The New Jersey Assembly passed a joint resolution early in 2019 designating January as NUT Carcinoma Awareness month! Click HERE to read the entire bill (NJ AJR103). A video of a speech made by Assemblyman Kevin Rooney when the legislation was passed can be viewed HERE.

MEDIA:

Please view the video below to learn more about NUT carcinoma:

We welcome any donations.

The NC Registry is a foundational tool to study NUT carcinoma and develop better treatments for patients with this disease.

Cancer Journeys

Be informed and inspired with stories from NUT carcinoma survivors

View their stories HERE